Tuesday, September 1, 2009


Today was the day we had Gavin's appointment to have his head rescanned and to meet with the specialist to determine our next plan of treatment for this little guy. I would be lying if I said I did not struggle a little today or that my heart did not hurt the past couple of days. I thought I was okay with all of this, but I must admit that I have had very mixed emotions about this as the time got closer for us to find out what our next step would be. After a long day, I sit here tonight at peace with the decisions we have made in regards to Gavin.

We started our morning out at the Orthotics and Prosthetics facility having his head rescanned to see if the measurements had changed from one month ago. When they put this sock on his little head, I could not help but laugh. It reminded me of how some of my students come to school in the morning. He looked so cute.
This is the machine that scanned his little head. It took several times to get a good scan because he kept moving, but we finally got one. This boy is WILD!!!

Technology is just amazing and thank God for it. Immediately his head popped up on this computer screen and the technician went to work crunching numbers, comparing it to his previous scans and aligning everything up. It was amazing to watch.

Just another shot of him comparing Gavin's scans that were done 4 weeks apart to see if there was a change in his Plagiocephally.

We took Emma along with us today so she could be involved in this process. We wanted her to be fully aware of what was going on with her baby brother and see exactly what he would be wearing in the next couple weeks. Did not take her long to pick up the cranial band and try to put it on herself. All day she kept saying, "my brothers getting a helmet like me"...yes, we require her to wear a helmet when she rides her tricylce.

After leaving the prosthetics facility, we went to see the specialist who had a good time doing some test on Gavin to document his range of improvement with the Torticollus and give us her recommendations on the cranial band. She was so impressed with how much he had improved and how active he was compared to last time.

Just look at that happy little fella, he never stops smiling. We were so proud of him today through out all of his appointments. He is such a super good baby boy.
So, we will be getting our helmet next Friday, September 11th. We will begin wearing it immediately and within the first week we will work our way up to wearing it 23 hours a day. As for how long he will wear it, that is unknown. It depends on how much growth he has and how quickly he responds to it. Our goal is to have him out of it by his 1st Birthday, so that would be within 6 months.
Despite the fact that it was a long and emotional day, I am THANKFUL. Thankful for health insurance, thankful for amazing health care, thankful for a healthy son, thankful for a supportive husband, thankful for a daughter that can put a smile on my face when I am sad, thankful for our pediatrician who referred us to therapy, thankful for the second referral that led us to the facilities we are working with presently, thankful for an understanding boss and coworkers who filled in for me today and are concerned, thankful for our families and friends support, thankful for prayers, thankful for Mrs. Jenny that loves and cares for my babies like they are her own, thankful we were so aggressive in getting this taken care of early on and most of all thankful for my GOD that will carry my little family through, while walking this journey with us, protecting our hearts along the way.


Darla DiStefano said...

wow, wow and wow! That technology is amazing! Gavin doesn't look concerned in the least! and Emma...oh, what a doll baby she is! Can't wait to see Gavin's little helmet all decorated up. That boy is a trooper!

Rebecca Jo said...

Looks like things are being watched & cared about - that's the best thing to be thankful... that & that you have the happiest little baby ever... with the most adorable big sister too!!!

I love Gavin in his "do-rag"!!!! He's gone gangsta!

Adventures on the Farm said...

You never cease to amaze me. We are still praying for you guys and know Gaving will be such a little champ about wearing his new helmet....Hugs and Kisses and prayers being sent your way!!!

Jennifer said...

As tough as I know that must have been, I am so thankful that this was caught so early and that Gavin will be able to move past this stage quickly. I will be praying for you and him both.
And I so LOVE little bits Matilda Jane outfit. I want a girl so badly when I see those adorable outfits.:) We have a cute little friend from church that wears MJ dresses and outfits every Sunday. And I love Gavin's little outfit as well. He is a doll!

Deidra Brown said...

Glad to hear that things are going. Gavin looks so handsome. I love Emma's MJ Clothing.What is the name of her dress? By the way I saw you name in the MJ site this morning. Eye on the Tiger. Congrats.

KK said...

Continuing to pray for your family as you take GOOD care of this 'happy' little fellow! He is precious and there is so much to be thankful for.
Blessings to all of you,
Matthew 21:22

Lianna Knight said...

Well, I am thankful for YOU and our friendship :)

Praying for that happy little boy...and his eyes in that picture tell the story...he IS happy!

Courtney said...

So the important question Frazier...who will be designing the band??? I hear that they MUST be a fashionable and being that Gavin is your child...it will be amazing :)